My Singing Angel

by Jane E. Babin (This was originally published in Cell 2 Soul in 2006) When I entered Massachusetts General Hospital last April to have a feeding tube placed in my stomach, I was very apprehensive. Don’t get me wrong. I had every confidence in the surgeons and staff at this prominent facility. Also, this procedure is done routinely. My cause for concern was my ALS, aka, Lou Gehrig’s disease. At the time, I had not yet had my tracheotomy. Because ALS is a neuromuscular disease that had begun to affect my diaphragm, I was afraid of any sedation that could compromise my already weakened ability to breathe. Try as they … Continue reading

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